There’s only one medicine, sodium oxybate, which treats all the symptoms of narcolepsy — daytime sleepiness, sleep attacks, REM intrusions, the whole deal. I’ve never tried this drug because it’s very tightly controlled, but it’s life-changing for so many people with narcolepsy, and honestly, my life needs changing. The medication I’m on doesn’t cut it, and my quality of life is poor.
So, I’ve started the process here in Spain to get sodium oxybate. The first step, after an initial appointment with a sleep specialist, was to undergo a sleep study to confirm that I have narcolepsy, which I did this past Wednesday and Thursday at the Institute of Sleep in Madrid. I’ll write more about my experience during the sleep study later — for now, enjoy this picture of me all wired up!
(Actually, after this was taken, I got tubes in my nose and electrodes on my neck, chest and hands, too. I felt like a cyborg!)